COPD patients and family members, let your voices be heard!

Dear Friend,

In 2004, the National Emphysema/COPD Association (NECA), previously known as the COPD Research Network, conducted the largest survey in the United States of persons with chronic lung disease, including chronic bronchitis, chronic obstructive pulmonary disease (COPD) and emphysema. The survey results provided valuable insights regarding the needs of the COPD community to physicians and other health care providers. We are now very excited to begin our follow up survey in conjunction with Innovative Health Solutions, Corp., a strategic healthcare analysis and research consulting firm.

Please find links to two surveys below. One survey is for the person with COPD. The other survey is for the individual who cares about the person with COPD and provides valuable assistance to them (for example, a spouse, a child or other close relative). Your household may complete either or both surveys. Each survey should be completed independently, without input from anyone else, within the next week to ten days.

To take the Patient survey, click here.

To take the other Household Member survey, click here.

Your participation is voluntary, but extremely important to all of us in the COPD community. If you have recently returned a printed version of this survey, you do not need to complete an Internet version. All answers will be treated as strictly confidential. No personal identifying information will be disclosed.

If you have any questions about the survey please send an email to survey@necaweb.org or call 1-866-340-NECA (6322).

There are instructions at the end of the survey explaining how to obtain a copy of the survey results, or how to be contacted regarding future surveys. 

We look forward to hearing from you!

Sincerely,
Barbara Rogers
President & CEO, NECA                                                       
Judith D. Bentkover, PhD
President & CEO, IHS